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You are a great nurse, I wish I could run into you when delivering my 2nd child. J7 y# L0 u+ B3 r% V8 ~- p$ {+ x
/ M7 U" b m0 q1 AMy own experience with Royal Alex is quite …... September 29, 2008, I delivered my daughter (2 months pre-mature) through c-section in Royal Alex. My doctor Dr. Langton, 65 some years old and he is awesome. ' k ?0 S# z$ }! d8 C R
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My husband and I were told that the child might have some issues 2 hours before the delivery. But we never imagine that the baby was late diagnosed with a very rare genetic-linked brains malfunction. I am a Chinese and my husband is originally from south America; what an odd to run into such a rare genetic disorder. 8 ?* c$ i- g, D4 Z
: T5 F+ {" H; A1 iThe baby was immediately taken to NICU and stayed there for over 2 months. My husband and I had no relatives in town; our life were living in hell during those days. We were told the final diagnose by Dr. Lee on Oct. 18, 2008 in a small conference room outside the NICU. “You two are great parents and I am very sorry to tell you that your daughter is never going to talk, walk, eat by herself and she might never know who is mother and who is father. Kids with LSR Type 1 usually only lives 2-3 years. You will still get enough support from NICU and follow-up clinics from time to time; however, there is no treatment available for this disease.” I can’t recall what exactly my husband and I did after hearing that bad news. All I can feel is pain! A pain until this day is still hunting me day in - day out.0 V+ k; Q. n& y4 g1 |8 Z. ~
0 k3 W, g5 Z6 ]6 T8 M- Q1 E9 yBecause my daughter’s condition is so rare, lots of nurses in the NICU don’t know how to handle. The head nurse had to print out a paper to educate young nurses about this particular disease. Most nurses were quite nice to us and tried to comfort us as much as possible. But there are still some mean ones; who I don’t understand why they become nurses at the first place. One day, I was holding my daughter and crying (I cried non-stops for the first 3 months). A nurse came to me and said, “I know it’s hard to accept. She looks so beautiful and normal. Imagine it’s just like I am saying you are a retard. But you don’t look like one. So it's even harder for you accept the fact that you are a retard. ” V4 p( m4 K+ N2 m9 H) K; C+ M; U4 m
) k/ i# u) N! \& x! k8 F; k, N( |3 R2 ZI was ready to kill her at that moment. But I simply said, “I have been living in Canada over ten years; I have a great job and a master degree. I am pretty sure that I am not a retard. My husband is quite successful in his field too. And our daughter has a genetic disorder; she is not a retard. As a health professional working in the infant care unit, shame on you for not having a heart.” That nurse (prefer not naming her) never shows up my daughters’ bedside after that. ! D$ o; H5 } H7 P. n
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This is the first time I share my special baby story; it brought back too much sorrow and pain. Today, my daughter is under my husband and my great care at home; despite all her sickness, she is beautifully growing. I always believe in love and respect life. My daughter is wonderful and I am so thankful that she teaches me how to be a better mother everyday with no condition, no return and no hope. # N% x' j* u. F r" e
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Thanks for being a great nurse and please keep the good work going for mothers, especially unfortunate ones like me. We rely on your skills and care to live through the darkest moment in their life. # }- v( | e0 g$ n4 b
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Julia |
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发表于 2009-4-12 00:07
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